Please use this identifier to cite or link to this item:
http://sgc.anlis.gob.ar/handle/123456789/2100
DC Field | Value | Language |
---|---|---|
dc.contributor.author | Groisman, Boris | es |
dc.contributor.author | Bidondo, María Paz | es |
dc.contributor.author | Gili, Juan | es |
dc.contributor.author | Barbero, Pablo | es |
dc.contributor.author | Liascovich, Rosa | es |
dc.date.accessioned | 2021-01-11T19:12:47Z | - |
dc.date.available | 2021-01-11T19:12:47Z | - |
dc.date.issued | 2013 | - |
dc.identifier.issn | 1945-6123 | - |
dc.identifier.uri | https://www.ncra-usa.org/Portals/68/PDFs/JRMSpring2013_40.01.pdf?ver=2017-08-03-121036-773 | - |
dc.identifier.uri | http://sgc.anlis.gob.ar/handle/123456789/2100 | - |
dc.description | Fil: Groisman, Boris. ANLIS Dr.C.G.Malbrán. Centro Nacional de Genética Médica; Argentina. | es |
dc.description | Fil: Bidondo, Maria Paz. ANLIS Dr.C.G.Malbrán. Centro Nacional de Genética Médica; Argentina. | es |
dc.description | Fil: Gili, Juan. Estudio Colaborativo Latinoamericano de Malformaciones Congénitas (ECLAMC)-CEGEBICEMIC; Argentina. | es |
dc.description | Fil: Barbero, Pablo. ANLIS Dr.C.G.Malbrán. Centro Nacional de Genética Médica; Argentina. | es |
dc.description | Fil: Liascovich, Rosa. ANLIS Dr.C.G.Malbrán. Centro Nacional de Genética Médica; Argentina. | es |
dc.description.abstract | In many low-and middle-income countries, birth defects are not considered a public health priority and are perceived by the medical community as rare, unpreventable events. In this context, a registry of birth defects should address not only the collection, analysis, and dissemination of information but also contribute to local interventions like prevention, diagnosis, and treatment. We describe the National Registry of Congenital Anomalies of Argentina (RENAC) in terms of case definition, data collection, quality assurance, and data sending, coding, analysis, and information dissemination and we present the strategies used to ensure its sustainability. We emphasize strategies for motivating the people collecting data, such as training activities, participation in research projects, returning the processed data, making useful clinical information available, giving non-monetary rewards, and linking cases to genetic services. | es |
dc.format | - | |
dc.language.iso | en | es |
dc.relation.ispartof | Journal of registry management | es |
dc.rights | Open Access | - |
dc.source | Journal of registry management 2013;40(1):29-31. | - |
dc.subject | Vigilancia en Salud Pública | es |
dc.subject | Mortalidad Infantil | es |
dc.subject | Argentina | es |
dc.title | Strategies to achieve sustainability and quality in birth defects registries: the experience of the National Registry of Congenital Anomalies of Argentina | es |
dc.type | Artículo | es |
anlis.essnrd | 1 | - |
item.openairecristype | http://purl.org/coar/resource_type/c_18cf | - |
item.cerifentitytype | Publications | - |
item.grantfulltext | open | - |
item.openairetype | Artículo | - |
item.fulltext | With Fulltext | - |
item.languageiso639-1 | en | - |
crisitem.author.dept | Centro Nacional de Genética Médica (CeNaGeM) | - |
crisitem.author.dept | Registro Nacional de Anomalías Congénitas (RENAC) | - |
crisitem.author.dept | Centro Nacional de Genética Médica (CeNaGeM) | - |
crisitem.author.dept | Registro Nacional de Anomalías Congénitas (RENAC) | - |
crisitem.author.dept | Centro Nacional de Genética Médica (CeNaGeM) | - |
crisitem.author.dept | Registro Nacional de Anomalías Congénitas (RENAC) | - |
crisitem.author.dept | Centro Nacional de Genética Médica (CeNaGeM) | - |
crisitem.author.dept | Registro Nacional de Anomalías Congénitas (RENAC) | - |
crisitem.author.parentorg | Administración Nacional de Laboratorios e Institutos de Salud “Dr. Carlos G. Malbrán” (ANLIS) | - |
crisitem.author.parentorg | Instituto Nacional de Epidemiología (INE) | - |
crisitem.author.parentorg | Administración Nacional de Laboratorios e Institutos de Salud “Dr. Carlos G. Malbrán” (ANLIS) | - |
crisitem.author.parentorg | Instituto Nacional de Epidemiología (INE) | - |
crisitem.author.parentorg | Administración Nacional de Laboratorios e Institutos de Salud “Dr. Carlos G. Malbrán” (ANLIS) | - |
crisitem.author.parentorg | Instituto Nacional de Epidemiología (INE) | - |
crisitem.author.parentorg | Administración Nacional de Laboratorios e Institutos de Salud “Dr. Carlos G. Malbrán” (ANLIS) | - |
crisitem.author.parentorg | Instituto Nacional de Epidemiología (INE) | - |
Appears in Collections: | Publicaciones CeNaGeM |
Files in This Item:
File | Description | Size | Format | |
---|---|---|---|---|
JRMSpring2013_40.01.pdf | Artículo en inglés | 2.29 MB | Adobe PDF | View/Open |
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